Patient & Family Healthcare Leadership: A Resource Compendium

"Created with input from patient and family council leaders, this resource is a summary of evidence and information about the impact of patient and family engagement on healthcare outcomes and care improvement. Included in this resource are “real-world” examples of current initiatives along with toolkits, frameworks, and primers related to the following topics: • Patient and family advisor councils • Quality, safety and value improvement • Patient- and family-relevant measures • Patient engagement and empowerment • Patient portals • C-suite engagement • Frontline staff engagement • Building design This continuously updated living resource encourages suggestions for inclusion from patient and family council leaders to create a network of continuous learning in the healthcare system. This has led to a sampling of patient and family councils and their role within their organization."