Welcome to the Patient Engagement Resource Hub of Healthcare Excellence Canada
The goal of the Patient Engagement Resource Hub is to be a compilation of patient engagement resources that are practical in nature to support the implementation and evaluation of engagement practices. These resources are open access, freely available, and are from local, provincial, national and international sources.
The resources in the Hub were selected based on criteria updated and revised in 2021 through engagement of patient partners and other users of the Hub.
The Hub is organized into eight main categories, which can be seen on this landing page. If you wish to refine the categories further, you will find further refinements for many of the eight categories on the search results page for each category.
Category definitions
Engagement Capable Environments
Engagement capable environment resources describe characteristics of healthcare organizations that support purposeful and meaningful engagement. Organizations in which leaders ensure strategic focus on the needs and priorities of patients/caregivers/communities, staff are prepared and supported to engage, and patient partners can contribute in meaningful ways.
Foundations
Foundations resources cover fundamental concepts and best practices in engagement. They cover guidance useful to each phase of an engagement journey from planning to wrap-up.
Approaches to Engagement
Approaches to engagement resources showcase engagement initiatives which may follow an established structure. There are a wide range of engagement methods that can be utilized to capture and embed lived experience perspectives.
Evaluating Patient Engagement
Evaluating patient engagement resources support the systematic process of determining merit, value and/or significance of patient engagement efforts. These resources support the evaluation of patient engagement efforts at various levels; initiative, project, program, organizational and system.
Specific Populations
Specific population resources are categorized according to who is being engaged. Engagements may be designed around the population being engaged. Learnings like common goals, barriers to engagement, and other considerations may be acquired through resources pertaining to engagement of a certain population.
Community Engagement
Community Engagement resources provide guidance on engagement that supports initiatives that may be community led. Community engagement supports communities to shape and lead health and care initiatives. Community engagement extends beyond listening and learning from an individual’s lived experience in the health system but rather the collective lived experience of a group of people who are connected by values, shared experience and/or history which may be based on shared commonalities (e.g. faith, politics, race or ethnicity, age, sexual orientation, gender identity, hobbies, etc.)
Patient Engagement in Research
Patient engagement in research resources describe how patients, caregivers and community members partner in research governance, priority setting, conducting research and knowledge translation.
Direct Care
Direct care resources provide guidance on engagement and partnership in patient care, including how patients and caregivers can be active participants in their own care and that of their loved ones.
