Financial Compensation of Patients, Caregivers, and Patient/Caregiver Organizations Engaged in PCORI-Funded Research as Engaged Research Partners

This guideline developed by PCORI emphasizes the important of research activities reflecting the time and contributions of all patient partners. Compensation of patient partners, caregivers and other voices is important in demonstrating the value of the time and effort required to participate in research, and ensures that these individuals are treated as valued contributors to the research project, and can help to facilitate and further engagement. This resource includes a sample matrix addressing the various levels of engagement and appropriate compensation.