This presentation was delivered in March 2019, by Michel Mercier and Julie Bergeron from the National Institute for Excellence in Health and Social Services (INESSS) at the Canadian Foundation for Healthcare Improvement’s Diversity in Patient Engagement Learning Exchange event. The presenters shared the development of draft clinical practice guidelines aimed at supporting greater self-reliance among younger people with intellectual disabilities. This work was done in partnership with parents and through consultations with the younger people.
The expertise and insights gained from the project resulted in recommendations that directly reflect the needs and priorities of younger people and their families – positioning their life goals as drivers for the proposed interventions.
Learnings include: